The following papers were produced by researchers who work with the Foundation. They report ideas and findings that are central to the Foundation's work.

Wennberg, JE, Fisher ES, Stukel TA, Sharp SM. Use Of Medicare Claims Data To Monitor Provider-Specific Performance Among Patients With Severe Chronic Illness. Health Affairs web exclusive, 7 October 2004.

Sepucha KR, Fowler FJ, Mulley AG. Policy Support For Patient-Centered Care: The Need For Measurable Improvements in Decision Quality. Health Affairs web exclusive, 7 October 2004.

Blumenthal, David. Decision, Decisions: Why The Quality Of Medical Decisions Matters. Health Affairs web exclusive, 7 October 2004.

O'Connor AM, Stacey D, Entwistle V, Llewellyn-Thomas H, Rovner D, Holmes-Rovner M, et al. Decision aids for people facing health treatment or screening decisions. Cochrane Database Systematic Reviews 2003(2):CD001431.

Skinner J, Weinstein JN, Sporer SM, Wennberg JE. Racial, ethnic, and geographic disparities in rates of knee arthroplasty among Medicare patients. New England Journal of Medicine 2003;349(14):1350-1359.

Wennberg JE, Fisher ES, Skinner JS. Geography and the Debate over Medicare Reform. Health Affairs web edition, 13 February 2002.

Fowler FJ. The Role of Patient Preferences in Medical Care. Distinguished lecture series, 1994-1995, November 1994. Sponsored by: Office of Graduate Studies and Research, University of Massachusetts Boston.

Decision Making

Shared Decision Making Development
Kasper JF, Mulley, AG, Wennberg JE. Developing shared decision-making programs to improve the quality of health care. Quality Review Bulletin 1992; 18(6):183-190. Medline link

Mort EA. Clinical decision-making in the face of scientific uncertainty: Hormone replacement therapy as an example. Journal of Family Practice 1996;42:147-151. Medline link

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Background

Arora NK, McHorney CA. Patient preferences for medical decision making: who really wants to participate? Medical Care 2000;38(3):335-341. Medline link

Barry MJ, Mulley AG, Fowler FJ, Wennberg JE. Watchful waiting versus immediate transurethral resection for symptomatic prostatism: the importance of patients' preferences. The Journal of the American Medical Association 1988;259:3010-3017. Medline link

Barratt A, Trevena L, Davey HM, McCaffery K. Use of decision aids to support informed choices about screening. British Medical Journal 2004;329(7464):507-510. Medline link

Berwick DM. My right knee. Annals of Internal Medicine 2005; 142: 121-125. Medline link

Fowler FJ, Wennberg JE, Timothy RP, Barry MJ, et al. Symptom Status and Quality of Life Following Prostatectomy. The Journal of the American Medical Association 1988, 259, 3018-3022. Medline link

Greenfield S, Kaplan S, Ware JE, Jr. Expanding patient involvement in care. Effects on patient outcomes. Annals of Internal Medicine 1985;102(4):520-528. Medline link

Merenstein D. A piece of my mind. Winners and losers. JAMA 2004;291(1):15-16. Medline link

Mulley AG, Eagle KA. What is inappropriate care? The Journal of the American Medical Association 1988; 60:540-1. Medline link

Mulley AG. Assessing patients' utilities: Can the ends justify the means? Med Care 1989; 27:S269-S281. Medline link

Mulley AG. Outcomes Research: Implications for Policy and Practice. In Smith R, Delamothe T., eds. Outcomes into Clinical Practice. London: British Medical Journal Publishing Group. 1995.

Mulley AG. Improving the Quality of Decision Making. Journal of Clinical Outcomes Management, 1995; 2:9-10.

O'Connor AM, Légaré F, Stacey D. Risk communication in practice: The contribution of decision aids. British Medical Journal 2003 327:736-740. Medline link

Wennberg JE, Barnes BA, Zubkoff M. Professional uncertainty and the problem of supplier-induced demand. Soc Sci Med 1982; 16:811-42. Medline link

Wennberg JE, Mulley AG, Hanley D et al. An assessment of prostatectomy for benign urinary tract obstruction. Geographic variations and the evaluation of medical care outcomes. The Journal of the American Medical Association 1988; 259: 3018-22. Medline link

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General

Brehaut JC, O'Connor AM, Wood TJ, Hack TF, Siminoff L, Gordon E, et al. Validation of a decision regret scale. Medical Decision Making 2003;23(4):281-292. Medline link

Kaplan SH, Greenfield S, Gandek B, Rogers WH, Ware JE, Jr. Characteristics of physicians with participatory decision-making styles. Annals of Internal Medicine 1996;124(5):497-504. Medline link

McNutt RA. Shared medical decision making: problems, process, progress. JAMA 2004;292(20):2516-2518. Medline link

Molenaar S, Sprangers MA, Postma-Schuit FC, Rutgers EJ, Noorlander J, Hendriks J, et al. Feasibility and effects of decision aids. Medical Decision Making 2000;20(1):112-127. Medline link

O'Connor AM, Rostom A, Fiset V, et al. Decision aids for patients facing health treatment or screening decisions: Systematic review. British Medical Journal 1999; 319:731-4. Medline link

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BPH

Barry MJ, Cherkin DC, Chang Y, et al. A randomized trial of a multimedia Shared Decision-making Program for men facing a treatment decision for benign prostatic hyperplasia. Disease Management and Clinical Outcomes 1997; 1:5-14.

Barry MJ, Fowler FJ, Mulley AG, et al. Patient reactions to a program designed to facilitate patient participation in treatment decisions for benign prostatic hyperplasia. Med Care 1995;33:771-782. Medline link

Murray E, Davis H, See Tai S, et al. Randomised controlled trial of an interactive multimedia decision aid on benign prostatic hypertrophy in primary care. British Medical Journal 2001; 323: 493. Medline link

Piercy GB, Deber R, Trachtenberg J, et al. Impact of a shared decision-making program on patients with benign prostatic hyperplasia. Urology 1999;53: 913-920. Medline link

Rovner DR, Wills CE, Bonham V, Williams G, Lillie J, Kelly-Blake K, et al. Decision aids for benign prostatic hyperplasia: applicability across race and education. Medical Decision Making 2004;24(4):359-366. Medline link

Wagner EH, Barry MJ, Barrett P, et al: The effect of a shared decision-making program on rates of surgery for benign prostatic hyperplasia. Med Care 1995;33:765-770. Medline link

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Collins MM, Fowler FJ, Jr., Roberts RG, Oesterling JE, Annas GJ, Barry MJ. Medical malpractice implications of PSA testing for early detection of prostate cancer. Journal of Law, Medicine and Ethics 1997;25(4):234-242, 230. Medline link

Flood AB, Wennberg JE, Nease RF, et al: The importance of patient preference in the decision to screen for prostate cancer. Journal of General Internal Medicine 1996; 11:342-349. Medline link

Frosch DL, Kaplan RM, Felitti V. The evaluation of two methods to facilitate shared decision-making for men considering the prostate-specific antigen test. Journal of General Internal Medicine 2001;16:391-8. Medline link

Partin MR, Nelson D, Radosevich D, Nugent S, Flood AB, Dillon N, et al. Randomized trial examining the effect of two prostate cancer screening educational interventions on patient knowledge, preferences, and behaviors. Journal of General Internal Medicine 2004;19(8):835-842. Medline link

Ransohoff DF, McNaughton Collins M, Fowler FJ. Why is prostate cancer screening so common when the evidence is so uncertain? A system without negative feedback. American Journal of Medicine 2002;113(8):663-667. Medline link

Volk RJ, Spann SJ. Decision-aids for prostate cancer screening. Journal of Family Practice 2000;49(5):425-427. Medline link

Volk RJ, Spann SJ, Cass AR. A randomized controlled trial of shared decision making for prostate cancer screening. Arch Fam Med 1999;8:333-40. Medline link

Volk RJ, Spann SJ, Cass AR, Hawley ST. Patient education for informed decision making about prostate cancer screening: A randomized controlled trial with 1-year follow-up. Ann Fam Med. 2003;1:22-28. Download pdf

Wilkins E, Lowery J, Hamill J. The impact of shared decision-making in prostate specific antigen (PSA) screening. Med Decis Making. 1999;19(4): A525.

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Fagerlin A, Rovner D, Stableford S, Jentoft C, Wei JT, Holmes-Rovner M. Patient education materials about the treatment of early-stage prostate cancer: a critical review. Annals of Internal Medicine 2004;140(9):721-728. Medline link

Onel E, Hamond C, Wasson JH, et al. Assessment of the feasibility and impact of shared decision making in prostate cancer. Urology 1998; 51:63-66. Medline link

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Bernstein S, Skarupski K, Grayson C, et al. A randomised controlled trial of information-giving to patients referred for coronary angiography: effects on outcomes of care. Health Expectations 1998;1:50-61. Medline link

Deber RB: Shared decision making in the real world. The Journal of General Internal Medicine 1996; 11:377-78. Medline link

Liao L, Jollis JG, DeLong ER, et al: Impact of interactive video on decision making of patients with ischemic heart disease. The Journal of General Internal Medicine 1996; 11:373-376. Medline link

Morgan MW, Deber RB, Llewellyn-Thomas HA, et al: Randomized, controlled trial of an interactive videodisc decision aid for patients with ischemic heart disease. The Journal of General Internal Medicine 2000 Oct;15(10):685-93. Medline link

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Chapman G, Elstein A, Hughes KK. Effects of patient education on decisions about breast cancer treatments. Med Decis Making 1995;15:231-239. Medline link

Goel V, Sawka CA, Thiel EC, Gort EH, O'Connor AM. Randomized trial of a patient decision aid for choice of surgical treatment for breast cancer. Medical Decision Making 2001;21(1):1-6. Medline link

Gramlich EP, Waitzfelder BE. Interactive video assists in clinical decision making. Methods of Information in Medicine 1998;37:201-5. Medline link

Green MJ, Peterson SK, Baker MW, Harper GR, Friedman LC, Rubinstein WS, et al. Effect of a computer-based decision aid on knowledge, perceptions, and intentions about genetic testing for breast cancer susceptibility: a randomized controlled trial. JAMA 2004;292(4):442-452. Medline link

Maslin AM, Baum M, Walker JS, A'Hern R, Prouse A. Using an interactive video disk in breast cancer patient support. Nursing Times 1998; 94:52-5. Medline link

Whelan T, Levine M, Willan A, Gafni A, Sanders K, Mirsky D, et al. Effect of a decision aid on knowledge and treatment decision making for breast cancer surgery: a randomized trial. JAMA 2004;292(4):435-441. Medline link

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Barrett PH, Beck A, Schmid K. Treatment Decisions about Lumbar Herniated Disk in a Shared Decision-Making Program. The Joint Commission Journal on Quality Improvement 2002;28(5):211-9. Medline link

Deyo RA, Cherkin DC, Weinstein J, et al. Involving patients in clinical decisions: Impact of an interactive video program on use of back surgery. Med Care. 2000;38(9):959-69. Medline link

Phelan EA, Deyo RA, Cherkin DC, et al. Helping Patients Decide About Back Surgery: A Randomized Trial of an Interactive Video Program. Spine 2001; 26:206-12. Medline link

Spunt BS, Deyo RA, Taylor VM, et al. An interactive videodisc program for low back pain patients. Health Educ Res 1996; 4:535-541. Medline link

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Connelly MT, Rusinak D, Raeke L, et al. Randomized trial of interventions to support decision making about postmenopausal hormone replacement therapy. The Journal of General Internal Medicine 1999;14:A21.

Murray E, Davis H, See Tai S et al. Randomised controlled trial of an interactive multimedia decision aid on hormone replacement therapy in primary care. British Medical Journal 2001; 323: 490. Medline link

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